Everyone has been lovely – truly – stopping me to say they’re praying for me. It means the world. Here’s a request though, when you pray, pray specifically that any roadblocks to the internal review of the surgery be lifted, eradicated, wiped out, disappear. No one discounts the dystonia diagnosis. There are numerous examples of deep brain stimulators improving the lives of people with this condition. My surgeon is highly qualified and experienced. This is simply new ground for my healthcare system. So…please be specific. Pray that surgery proceeds as… Read more Specifically… →
I’ve always thought that “ain’t scared” sounded goofy – but it’s the only thing that comes to mind when I consider this post… Friends ask me if I’m scared about the upcoming deep brain stimulation (DBS) surgery. I’m anxious – not scared. Anxious about what to expect post-surgery, and honestly a little anxious about what I’ll miss at work and within my community groups and circle of friends while recuperating. I’m “scared” of what might happen if I don’treceive treatment, scared of falling more often and harder, scared of an increasing… Read more “Ain’t Scared” →
Many of you are familiar with my “klutziness”. I have fallen into more rooms and meetings than I can remember. Two years ago, I was diagnosed with hemi-dystonia. In its simplest terms, my brain often fails to communicate with the left side of my body. (Something I find incredibly ironic, having worked in communication for over thirty years.) This past September, I fell down a flight of stairs, at home, very early in the morning; when most of my body started down the steps to the lower level of our… Read more Surgery Postponed →
Lori Marble 