Anyone with a deep brain stimulator – for dystonia – will probably recount different experiences of how quickly and how effectively their treatment worked. (Quickly is operative here. For most DBS/dystonia recipients results aren’t readily apparent until they are a year to 18 months within their treatment.) I’m triple blessed. First, I could tell from the first day that we turned the battery “on” that this device would help. Second, my care team have been open to to trying varying approaches to channels and intensity of settings to find the… Read more 3 days/4 channels…and Excel →
I’ve been looking for a way to begin again: begin blogging again. Begin a daily creative habit – again. For all of the oddity, fear, and pivoting required in 2020…I was surprisingly blessed. I had artwork accepted in local exhibits. I had a successful showing in Urban Art Gallery, Joplin. I found my style, my way of painting. I also made it a year without falling. I learned to be aware of the vulnerability caused by the hemi-dystonia and my deep brain stimulator (DBS). Another highlight I’m just now realizing…I… Read more Begin Again →
A few months ago the Mercy integrated marketing team asked if I would speak about my experiences leading up to the deep brain stimulation (DBS) surgery. The following link takes… Read more My experience: a video →
Since that time, I have painted abstracts almost exclusively left-handed.
My iPhone has a mind of its own. Dropping my phone into my purse or accidentally sliding it across a hard surface will activate Apple Music to being playing songs from my library. Earlier today, after knocking several items off my desk, I heard the familiar bass guitar beat of one of my favorite songs Turn It On Again by Genesis. Earphones in and volume up, I enjoyed a quick 3 minutes and 52 seconds of 80s power chords. I’ve said before that if I were a professional baseball or… Read more Beautiful synchronicity →
I did not want the day to end without acknowledging that it was one year ago when I fell down our kitchen stairs, placing the shattered pieces of one of my favorite coffee cups in my leg, blackening my eye, cutting my face…and finally convincing myself that something was seriously “off” with my health. Over the past 365 days: I received the confirmation of a diagnosis of hemi-dystonia, undergone deep brain stimulation surgery and work with wonderful physical and occupational therapists. Past year highlights: friends who gave me a roller… Read more What a long, strange year… →
It’s the start of the Labor Day weekend and weeks/months since I updated my experience following deep brain stimulation (DBS) surgery. A packed work schedule at the beginning of the summer, signaled the potential for added stress. Obviously, life in general is not without stressors, but for me, it can intensify my hemidystonia symptoms: awkard gait, and clenched left fist. Refreshing my therapy timeline: I had surgery the end of February, device turned on mid-March, with physical and occupational therapy commencing in April. If you know me you know I… Read more There really should be a test…. →
Today marks two months since my deep brain stimulator was turned “on”. When my power setting was initially determined, I could strut a straight line at a 4.0 I was sent home at a 2.0, with a device that would allow me to check my implanted battery strength and adjust my DBS device within a 2.0 – 4.0 range. Always one to think if a little is good a lot is fantastic, I began adjusting up, by 0.1 increments, my device on an every-other-day basis until I reached 2.9. At… Read more Turn it up! →