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Tag: hemidystonia

Beautiful synchronicity

My iPhone has a mind of its own. Dropping my phone into my purse or accidentally sliding it across a hard surface will activate Apple Music to being playing songs from my library. Earlier today, after knocking several items off my desk, I heard the familiar bass guitar beat of one of my favorite songs Turn It On Again by Genesis. Earphones in and volume up, I enjoyed a quick 3 minutes and 52 seconds of 80s power chords. I’ve said before that if I were a professional baseball or… Read more Beautiful synchronicity

What is…second day back at work?

So today was my second day back at work after a little more than a month off for deep brain stimulation surgery. At first I was scared the surgery would never happen. Next, I was scared the surgery would happen. (After all – it’s my brain.) I have hemi dystonia. After working in communication for over 30 years, my brain decides – at times – it won’t “communicate” with the left side of my body. I’m blessed to work in a hospital system with some incredibly talented neurologists and neurosurgeons.… Read more What is…second day back at work?

Oh. My. Goodness!

It’s working! We just finished two hours with the Medtronic representatives – testing the device, setting my levels. One of my fears was that today would feel like it does for me when I visit the eye doctor: “Is the first lens better than the second? Is this view better than the last?”….and many times I’m thinking, “Well there’s good aspects to both. Which one is best?” Nope. This was, and is, clean cut. As one of the sensors was activated, I would feel tingling and possibly my speech would… Read more Oh. My. Goodness!

Surgeries – all done!

Both Stage I and Stage II deep brain stimulation surgeries are complete and behind us. Throughout all the experiences and appointments leading up to and during these procedures, we have met the smartest and kindest medical professionals. It seems as if I haven’t been at work in ages. I’m missing my routines. I’m missing my friends…which may have been part of the impetus behind my pushing the limits ‘just a smidge’ at home Tuesday afternoon. I experienced a seizure, which we discovered isn’t uncommon after this type of surgery –… Read more Surgeries – all done!