Update and Random Thoughts: Day 5 Post Surgery

I knew ahead of my Deep Brain Stimulation (DBS) – Stage I Surgery on Feb 20 that my post surgery ‘expectation of accomplishments’ were sliding down a steep slope toward illusionary.

Reading: My plan includes to read or finish reading four books: Illume: Mysteries of Light by Fr. Philip Krill, The Library Book by Susan Orlean, A Return to Love by Marianne Williamson and Measure What Matters by John Doerr.

Painting: I ‘planned’ to break open a new sketchbook – including a daily watercolor floral insert. Continuing in this vein…I planned to paint 20 abstract multimedia works on paper. I think I’ve watercolor “sketched” three days and i have three abstract works in progress.

Created by Hobart Design Group

Superficial: I was surprised to discover my head is a decent shape. I had no idea what to expect. Also, the surgery did not leave me cue-ball bald but I am sporting a very tight burr haircut. Every day I have enjoyed matching earrings to my growing hat/wrap/turban collection, which in turn is matched to the pajamas of the day. Also, I made a decision every day would be full-on makeup, right down to bright red lipstick. (It took me until I was age 53 and having undergone DBS surgery to start this habit – my grandmother would be so proud I’m wearing lipstick!)

Health: I’m turning into a serious germaphobe. It is my current full-time job to stay healthy. I’m drinking a large amount of water. I’m napping. I haven’t left the house in days. I’m eating a healthy diet. My pain is manageable. The incision is larger than I anticipated but I’ve always found I downplay these events in my mind leading up to them…so I wasn’t completely surprised.

My why – diagnosis reminder: I have dystonia. Specifically, hemi-dystonia. At it’s simplest, the left side of my body doesn’t always get the message that it should move. That’s why/how I fell down the staircase in September. (As well as fell up or down many other staircases in my lifetime.) It’s why I often stumble or stutter-step when I walk. It’s why my left-hand curls up and doesn’t grasp or manipulate well. Most importantly, my condition was not improving but was increasingly problematic.

Blessed: This week has reminded me I am blessed beyond measure with wonderful friends and family. Thank you! Thank you!

Next step: DBS Surgery Stage II is this week. The surgeon will implant the small battery pack under my collar bone, connect the wires to the “transmitter” placed in my brain during Stage I. We’ll wait approximately five weeks for the swelling to recede – then turn it on!

18 Comments »

  1. I’ve been thinking of you so much. I’m amazed at your strength, tenacity, positive outlook and humor. I’m always sending positive thoughts your way. Much love, strength and healing to you!

    Amanda

  2. Lori,
    I knew you would be convalescing fashionably. When Spring arrives, I look forward to seeing your sweet face as you walk strong and steady.
    Hugs,
    JoyB

  3. A goal of reading 4 books is a hefty goal for anyone! Several paintings is a goal even Monet didn’t have! I love your “ask me about my earrings” painting! You are so clever and have a wonderful imagination. And, yes, you are blessed. And your friends and family are blessed to be a part of your life. Love you friend! Thank you so much for the update.

  4. Sounds like it’s okay to recalibrate the rate you’ll take on recovery. You’re more of a slow cooker than a microwave. Good taste takes time, and I know you have excellent taste.

  5. Thanks for the newsy update! Here’s hoping the time passes quickly during your reading and painting challenge! I’m thinking that’s enough work for a one person exhibit! Take care……see you on iTunes!

  6. Love your feisty attitude! Praying for you today as your amazing journey continues. I’m loving the mental picture I have of you in your cute pj’s with matching turban and earrings and red lipstick. Way to knock this recuperating thing out of the ballpark! 😍

  7. I have to ask – does your lipstick have an orange undertone or more of a pink one? 🙂 My mom said to watch for this in matching outfits, etc.
    It’s wonderful to see that you’re as creative and witty as ever. If anyone can mark these goals off her list, it is you. Please just don’t overdo and get rest as needed. Sounds like you have an excellent care plan. Proud of you for your strength and positive attitude. Prayers my friend….

  8. So glad to have discovered your blog. You have been through so much my friend. I pray for your continued healing. I had no idea you were such a talented artist! I love your work. Love and prayers coming from Texas.

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