Update and Random Thoughts: Day 5 Post Surgery
I knew ahead of my Deep Brain Stimulation (DBS) – Stage I Surgery on Feb 20 that my post surgery ‘expectation of accomplishments’ were sliding down a steep slope toward illusionary.
Reading: My plan includes to read or finish reading four books: Illume: Mysteries of Light by Fr. Philip Krill, The Library Book by Susan Orlean, A Return to Love by Marianne Williamson and Measure What Matters by John Doerr.
Painting: I ‘planned’ to break open a new sketchbook – including a daily watercolor floral insert. Continuing in this vein…I planned to paint 20 abstract multimedia works on paper. I think I’ve watercolor “sketched” three days and i have three abstract works in progress.
Superficial: I was surprised to discover my head is a decent shape. I had no idea what to expect. Also, the surgery did not leave me cue-ball bald but I am sporting a very tight burr haircut. Every day I have enjoyed matching earrings to my growing hat/wrap/turban collection, which in turn is matched to the pajamas of the day. Also, I made a decision every day would be full-on makeup, right down to bright red lipstick. (It took me until I was age 53 and having undergone DBS surgery to start this habit – my grandmother would be so proud I’m wearing lipstick!)
Health: I’m turning into a serious germaphobe. It is my current full-time job to stay healthy. I’m drinking a large amount of water. I’m napping. I haven’t left the house in days. I’m eating a healthy diet. My pain is manageable. The incision is larger than I anticipated but I’ve always found I downplay these events in my mind leading up to them…so I wasn’t completely surprised.
My why – diagnosis reminder: I have dystonia. Specifically, hemi-dystonia. At it’s simplest, the left side of my body doesn’t always get the message that it should move. That’s why/how I fell down the staircase in September. (As well as fell up or down many other staircases in my lifetime.) It’s why I often stumble or stutter-step when I walk. It’s why my left-hand curls up and doesn’t grasp or manipulate well. Most importantly, my condition was not improving but was increasingly problematic.
Blessed: This week has reminded me I am blessed beyond measure with wonderful friends and family. Thank you! Thank you!
Next step: DBS Surgery Stage II is this week. The surgeon will implant the small battery pack under my collar bone, connect the wires to the “transmitter” placed in my brain during Stage I. We’ll wait approximately five weeks for the swelling to recede – then turn it on!