Good news and progress

It’s been 24 days since the first surgery to insert the brain probe and 17 days since the battery pack insertion surgery.

Created by Hobart Design Group

Following the second surgery, I made promises to Alan, my physicians and family/friends that I would take it easy – make an effort to rest and relax. I’ve mastered the art of sleeping a full eight hours, napping and reading. There’s a very good chance I will complete my pre-surgery reading list.

The “big news” is that we’ll switch “on” the battery pack this coming Thursday, March 21. I had earlier believed that we would have to wait until early April – so getting a jumpstart on walking better – sooner – is thrilling.

Lastly, there is no doubt I am blessed. When the kids were little, they would ask me if we were rich. I would quickly reply, “Yes! Of course! We are rich in friends and family.” Nothing in recent memory has proved that more accurate than the outpouring of calls, texts, cards and flowers in the past four weeks.

For as “aghast” as I was at the thought of having my head shaved before the first surgery…I’m now not so sure I won’t keep the ultra short look. The big earrings and the head wraps are working for me. I even had my friend Julie, Calotype Photography, take a head/shoulder shot so we can remember this time. It feels pivotal.

Side note: I’ve began a series of abstract paintings. I’m referring to them as the “Wonky Series”; 20 abstracts painted entirely with my “wonky” left hand. Currently I’m on painting 7/20. They’ve been fun, frustrating, surprising and oddly colorful. I currently lack a great deal of fine motor control in my left hand but I think this daily engagement of my creative right brain, which wonderfully, ironically and beautifully controls my left side will continue to unveil surprises.

Thank you for caring. Thank you for asking questions. Thank you for discovering, along with me, the fascinating impact of modern medicine.

20 Comments »

  1. Sending love and best wishes for all to go well this week. What you’ve done here is remarkable and I am so grateful to you for sharing it with all of us.

    Can’t wait to have you back. Meanwhile, rest, read, recharge! xoxoxo

  2. You DO know there’s a book or at least a TED talk in here. You’ve been required to go on this journey by your brain, and have turned it into something wonderful, joyful and creative. I can’t wait for the next installment in your tale of brains meeting batteries.

  3. Does tomorrow morning work? 11 your time, 10 mine? I have lots of good and crazy stuff to share. Nothing as exciting as a gentle cattle prod to the brain, nonetheless….

  4. Thank you for being you – for sharing and rejoicing and battling through and telling us over and over that there is some truth to all those corny phrases that we have passed along and that you are living through: “lemonade out of lemons,” “rainbows after the rain,” “light at the end of the tunnel.” Can hardly wait to see those paintings! God isn’t through with you yet! Sent with love,

    Geri

  5. There is something about being forced to stop “life” as you knew it, (i.e. as we thought we were controlling it) and pursuing new paths but in the old neighborhood of life!
    Will be joining with many others in prayer with you Thursday.

  6. I think of you often and recently remembered of the penny in a bag conversation we had at lunch when Todd and I first started with the team. Lol! I LOVE your creative brain (both sides) and love and appreciate you so very much! Glad to hear that healing is happening. Be patient and give yourself time to continue the healing process. When I come to Joplin later this spring I’d love to make a venture to your house to visit. ❤️❤️❤️

    • You’re a hoot! (Seriously – when do you sleep?) I would love to see you when you come to turn – would be hurt if we couldn’t connect. I return to work Monday so meeting in Joplin will be easy. Much love!

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