Turn it up!
Today marks two months since my deep brain stimulator was turned “on”.
When my power setting was initially determined, I could strut a straight line at a 4.0
I was sent home at a 2.0, with a device that would allow me to check my implanted battery strength and adjust my DBS device within a 2.0 – 4.0 range. Always one to think if a little is good a lot is fantastic, I began adjusting up, by 0.1 increments, my device on an every-other-day basis until I reached 2.9. At that point cooler heads prevailed and asked if I had ran my high voltage philosophy past any experts – or possibly a neurologist- and I had to admit I hadn’t.
I was one month “in” at that point. I had been evaluated by a neuro-physical therapist but hadn’t started treatment. So I asked my care team about my plan and was politely asked to stop. I was politely reminded that my body had to catch up to the treatment provided by the DBS. This wasn’t going to be a quick fix. I most likely wouldn’t see changes until six months.
So I waited.
Please note: turning up the device in the early stage was cool. I would feel little pin pricks or muscle twitches – only on the left side of my body.
Last week I asked for and received permission to adjust the dial up once again from a 2.9 to a 3.0. This time there was no inward sensation. No buzz. No twitch. No prick.
Except today in therapy there was noticeable improvement in mobility, plasticity, and range of motion. So much so that the therapist asked if I had indeed been granted permission to up the setting.
So…it was cool to learn first-hand the experts really do know what they’re talking about. That…and I’m still wearing some awesome earrings.